Chapter 1 - What is ASD?
Next Steps…
Now that you have completed the long process of evaluations, your child has officially been diagnosed with Autism! Amazing! Now what do you do? What are the next steps? Here is a list of things to consider after your child has received an Autism diagnosis. There is no specific order to checking off items on this list, however, it will be helpful to look into these to best support your child.
As you consider the items on this list, think about what you can change about your home environment to best fit your child’s needs (adopting a neurodiversity affirming approach). What about in the daycare or school setting? Collaborate with the child’s educators on various supports and accommodations in the classroom to meet your child’s needs.
The most important thing to remember is that, you don’t have to decide today. Please take your time during this process. Your child is the same child before the official diagnosis, when they received the diagnosis, and even after they have received the diagnosis. Consider taking an “Autism Moon” (similar to a couple’s honeymoon) for at least 30 days to soak in everything, research more about the diagnosis, and decide what are the best approaches to better support your child. If you are reading this, a gentle reminder that you are trying your best and your best is more than enough!
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Listen to Autistic voices. Seek out books, blogs, talks, and social media accounts by Autistic self-advocates. Their lived experience will offer essential insight into how to support your child with respect, understanding, and empowerment.
Advocate for your child’s strengths, interests, and needs in all environments (home, school, and community). Help others understand that your child communicates, processes, and engages with the world in their own valid way.
Explore and request educational supports. Collaborate with your child’s educators to create an Individualized Education Program (IEP) or other accommodations that reflect their communication style, learning profile, and sensory needs.
Build your support network. Connect with other families who honor a neurodiversity-affirming approach, as well as Autistic adults who can offer wisdom and encouragement. These communities can be powerful sources of learning, strength, and solidarity.
Surround your child with positive Autistic representation. Share books, videos, and stories that highlight Autistic joy, creativity, and success. This helps build pride, identity, and a deep sense of belonging.
If needed, access supportive services like occupational, speech, or physical therapy—making sure those services align with your child’s values and do not aim to “normalize” them but to support their autonomy and well-being.
Explore your community. Find organizations that actively include Autistic people in leadership and decision-making. Look for local and national groups that advocate for inclusive education, accessible spaces, and affirming social opportunities.
